This sign is a repeat from this summer. It's funny, eh? Well Carol (THANKS CAROL!) in Darby, Montana took the picture below in the gym. Only in Montana would you find a sign that says...
Monday, December 31, 2007
Only in Montana...
This sign is a repeat from this summer. It's funny, eh? Well Carol (THANKS CAROL!) in Darby, Montana took the picture below in the gym. Only in Montana would you find a sign that says...
Thursday, December 20, 2007
New York Times story about Addison's Disease
If you're interested in reading an Addison's diagnosis story, click here. Many people with Addison's are diagnosed while in the hospital, near death.
Please note: In the story it says people with Addison's don't produce adrenaline, I don't believe this is true. The autoimmune process of Addison's disease attacks the outer portion of the adrenal glands, where cortisol and aldosterone are produced. The inner portion of the adrenal gland is a separate organ and it is where the adrenaline is produced.
Please note: In the story it says people with Addison's don't produce adrenaline, I don't believe this is true. The autoimmune process of Addison's disease attacks the outer portion of the adrenal glands, where cortisol and aldosterone are produced. The inner portion of the adrenal gland is a separate organ and it is where the adrenaline is produced.
Monday, December 17, 2007
Wrestling a Chihuahua
This is Nicodemus. He's 9 weeks old and weighs 1 pound 8 ounces. I had the privilege of making him a sweater AND doggy sitting for him. Isn't he adorable?! It was quite the workout to wrestle with the little guy without smooshing him.
Paul and I went skate skiing on Saturday. Unfortunately, I got no skate skiing pictures but, typical of me, I took pictures of the signage! We're fortunate to have groomed trails in our area. Thank you Teton Valley Trails and Pathways!! Skate skiing is good cross training for running, especially if you can stay upright. I didn't fall down once even though I stink at skate skiing.
Friday, December 14, 2007
2007 coming to an end
The gym membership is up and A & I enjoyed our last day by (mis)using every piece of equipment in the gym. I'm not renewing because the cost relatively high compared to the services. Very sad because I like to get out of the house and workout. My garage is very cold...more about that in a minute.
Really, really messing around. Weight belt attached to the rubber band attached to the chin up bar. Not comfortable.
The temperature a couple of mornings ago. Typical of Teton Valley, Idaho. The cold winter temperatures and long, dark days are the reason we set up the "gym" in the garage.
A & I on the last day. You can't tell from the picture but we're wearing the same shirt. We didn't dress alike on purpose!
Really, really messing around. Weight belt attached to the rubber band attached to the chin up bar. Not comfortable.
In addition, we hit the treadmills and put them up to 15% grade and 8.3 miles an hour. A is much stronger than I and lasted longer. It's hard to run fast when you're laughing very hard.
The temperature a couple of mornings ago. Typical of Teton Valley, Idaho. The cold winter temperatures and long, dark days are the reason we set up the "gym" in the garage.
Favorite things
Bob inspired me to think about my favorite things and this is what I came up with:
Bruce Springsteen T-shirt from 1985
Amnesty International concert T-shirt from 1986
Creepy Christmas thing.
Mom, email me and shed some light on where this came from and why the heck I would like it.
Bruce Springsteen T-shirt from 1985
Amnesty International concert T-shirt from 1986
Creepy Christmas thing.
Mom, email me and shed some light on where this came from and why the heck I would like it.
Please email me pictures of your favorite things and why they are your favorite things! Email to contact@addisonssupport.com
Monday, December 10, 2007
Picked last in gym class
Yep, I really was. All through elementary school (I'm in the white dress next to the teacher), middle school and high school. I'm not much better at sports now but I can say I am persistent.
Want to succeed? Want to accomplish your goals? Set a goal, create reasonable steps, read inspirational books about what you want to accomplish, tell people about your goal, find a partner and/or coach and do the steps.
Make a plan and commit to it, you will succeed even if you were picked last in gym class!
"Success means having the courage, the determination, and the will to become the person you believe you were meant to be." George Sheehan (physician, author and running enthusiast)
Wednesday, December 5, 2007
Festival of Trees
The Teton Valley Hospital Foundation had it's annual Festival of Trees fund raiser. I'm on the TVHF Board and an active participant in this fund raiser set up. We were raising money for a cardiac monitoring system for the Teton Valley Hospital. This weekend we raised about $40,000 toward it! It was well worth the hard work we all put in last week and for the months preceding it.
Enjoy the pictures! There are not many of the trees because the pictures did not come out well. Photographer error (me).
Entrance to Bill Boney's Wildwood Room in Victor, Idaho
Fishing wreath, my favorite. Created by Milissa & Debra
Fiesta wreath
Grand Targhee's tree with $8,500 worth of cat ski, lodging, lift tickets, etc...
Owl tree, created by the floral designer at the 4 Seasons hotel in Jackson, Wyoming
Created by Carol
The wreath making team at the See N Save Thrift Store
I'm not useful at making wreaths so I tried to amuse the wreath makers with some big, shiny panties and a plaid belt.
The Wildwood Room pre set up
The Wildwood Room all set up
My head to toe thrift store outfit. Everything I have on was a second hand item! The whole outfit cost less than $30. I probably look like it but don't say it in the comments!
Enjoy the pictures! There are not many of the trees because the pictures did not come out well. Photographer error (me).
Entrance to Bill Boney's Wildwood Room in Victor, Idaho
Fishing wreath, my favorite. Created by Milissa & Debra
Fiesta wreath
Grand Targhee's tree with $8,500 worth of cat ski, lodging, lift tickets, etc...
Owl tree, created by the floral designer at the 4 Seasons hotel in Jackson, Wyoming
Created by Carol
The wreath making team at the See N Save Thrift Store
I'm not useful at making wreaths so I tried to amuse the wreath makers with some big, shiny panties and a plaid belt.
The Wildwood Room pre set up
The Wildwood Room all set up
My head to toe thrift store outfit. Everything I have on was a second hand item! The whole outfit cost less than $30. I probably look like it but don't say it in the comments!
Sunday, December 2, 2007
Sunday, November 25, 2007
Blogging
Addison's community and family: Should I continue this blog? If you want to continue to see pictures and hear my commentary about Addison's, migraines and endurance racing, let me know by emailing me contact at addisonssupport.com or by using the comment function at the end of this post (please comment anonymously if you would like). If you do want me to continue and there's something you'd like me to mention or take pictures of, let me know!
I've got a lot to say and will say it if anyone wants to hear it. Things I'd like to comment on if anyone's interested:
I've got a lot to say and will say it if anyone wants to hear it. Things I'd like to comment on if anyone's interested:
- Gluten/Addison's connection
- My recent reprieve from migraines!
- 2008 events and training
- Probiotics
Sunday, November 18, 2007
Pill trays
If you've got to take a lot of meds or meds throughout the day, it can be a pain in the butt to get the pill bottles out throughout the day and take your meds. Because I am lazy, I fill up these suckers (purchased at the local pharmacy) once a month to avoid getting the pill bottles out all of the time. It also insures that I get all of my meds throughout the day. If I know I have something coming up where my med needs are different for that day, I write the date on the pill box in erasable marker and fill the boxes accordingly. I also like doing filling these trays because it gives me a head's up for refilling my scripts. If I empty a pill bottle when filling my tray, I have some wiggle room for getting the pills refilled. I try to be careful filling the trays so I know that all of the little white pills are the little white pills I am supposed to be taking!!
Wednesday, November 14, 2007
Crossing the finish line.
Tuesday, November 13, 2007
Sunday, November 11, 2007
NYC Marathon Race Report - 23,705th place
What a great, fun race. I think the biggest race I had done before was one with a few hundred people. This one had 38,009 people! My finish time was: 4:38:17. Click the link and put in Hardman or F9700 to see all the stats. I was plenty happy with that time. Sorry there are no pictures from the race yet, I used a regular camera, not my digital. I will scan pictures when I get them. In the meantime, there are race pictures here.
Here's the story...
We arrived at Fort Wadsworth, Staten Island 2 hours before race time along with 40,000+ other people. What a sight! It was wall to wall people. The weather was perfect, cool and sunny. The people were pigs and left wall to wall trash. Sad.
We started the race running by running up the Verazanno Narrows Bridge. We ran across 4 other bridges and through 5 boroughs of Manhattan. The race ended in Central Park. All along the way people stood on the side of the road and helicopters flew overhead. Sometimes the people were 3 and 4 rows deep! Allison made us name tags and people cheered for us by name for the entire 4 hours and 38 minutes. I have never felt more like a superstar in my life!!! Here's a link to a video in case you're interested. The volunteers were incredible from start to finish. They were encouraging and friendly. Amazing!
Here's the story...
We arrived at Fort Wadsworth, Staten Island 2 hours before race time along with 40,000+ other people. What a sight! It was wall to wall people. The weather was perfect, cool and sunny. The people were pigs and left wall to wall trash. Sad.
We started the race running by running up the Verazanno Narrows Bridge. We ran across 4 other bridges and through 5 boroughs of Manhattan. The race ended in Central Park. All along the way people stood on the side of the road and helicopters flew overhead. Sometimes the people were 3 and 4 rows deep! Allison made us name tags and people cheered for us by name for the entire 4 hours and 38 minutes. I have never felt more like a superstar in my life!!! Here's a link to a video in case you're interested. The volunteers were incredible from start to finish. They were encouraging and friendly. Amazing!
It was awesome to see people who had many hurdles in life to get over running in this marathon. People were running for cancer, MS and other diseases. I saw a man with 2 prosthetic legs and another with one prosthetic leg. There was a guy in a wheelchair shuffling backwards up a gentle incline. These people were so inspirational!
Appreciate what you've got. Do more with yourself. Live healthy. Exercise. Help others.
If a guy with 2 prosthetic legs can run a marathon, you can do many things you dream of doing too. Baby steps will get you where you dream of going.
Appreciate what you've got. Do more with yourself. Live healthy. Exercise. Help others.
If a guy with 2 prosthetic legs can run a marathon, you can do many things you dream of doing too. Baby steps will get you where you dream of going.
I ended the race happy and tired. I was fortunate to run with Allison for the entire race. It was great going on the journey from just working out at the gym 3 years ago to running a half marathon to running the NYC marathon with Allison! She's a wonderful friend and an inspiration to me.
I followed my hydration, food and medication plan through out the race. I ate enough and drank as much as possible (it was not enough). I did not plan to take enough steroids. Wanda, you were right. We crossed the finish line and I nearly passed out. I laid on the disgusting ground and was promptly picked up by 2 medical people and dragged to the medical tent. I took 10 mg of HC and ate some salt, within 20 minutes I was back on my feet. We took the subway and train back to NJ were Donna and her mom Nancy threw us a nice little party (picture below).
It was a wonderful day that I will never forget! Thanks to everyone for the support through emails, phone calls, notes, Hope Oasis, etc!!!
I followed my hydration, food and medication plan through out the race. I ate enough and drank as much as possible (it was not enough). I did not plan to take enough steroids. Wanda, you were right. We crossed the finish line and I nearly passed out. I laid on the disgusting ground and was promptly picked up by 2 medical people and dragged to the medical tent. I took 10 mg of HC and ate some salt, within 20 minutes I was back on my feet. We took the subway and train back to NJ were Donna and her mom Nancy threw us a nice little party (picture below).
It was a wonderful day that I will never forget! Thanks to everyone for the support through emails, phone calls, notes, Hope Oasis, etc!!!
New Jersey Trip
Oh my gosh. What an amazingly great experience!!!!!!! Below are the pictures from the travels, pre and post race pictures. I will make a separate post of the race report. I don't expect anyone to want to read what's below, or anything that I write for that matter!!! I do hope you enjoy the pictures though!
The entire trip was very, very good. All of the travel went smoothly.
The entire trip was very, very good. All of the travel went smoothly.
At the Radburn train station with Nancy C and Allison. We took the train to Expo to pick up our race numbers and try to get free stuff. Both Nancy and Allison are grandmothers, can you believe that?!?!?! They both look amazing!!!
See the tail lights in the distance? We saw an impressive parade of police cars. I wasn't able to pull the camera out fast enough to take a better picture.
Me picking up my race packet at the Expo at the Jake Javitz Convention center.
I discuss Addison's with the "Medical Captain" at the Expo. Allison reminds me to ask all of the questions I need to ask. She's much smarter than I am!
Me picking up my race packet at the Expo at the Jake Javitz Convention center.
I discuss Addison's with the "Medical Captain" at the Expo. Allison reminds me to ask all of the questions I need to ask. She's much smarter than I am!
Monday, October 29, 2007
Whaambulance
My running season is over! I just can't muster up the enthusiasm to get outside and run. I hope that the last 10 months of training will carry me over the NYC marathon on Sunday! If nothing else, it will be cool to see the sights of the 5 boroughs.
I'm a little tired of attempting to adjust medications the way normal people's endocrine systems regulate theirs. Here's a month's worth of medication and supplements:
I need: a month of rest, some new goals, lots of various cross training.
Sunday, October 28, 2007
Pictures
I don't think I'm going to do anymore road running or road riding after the NYC Marathon. I hate the road running. It's dangerous (if you're talking on a cell phone, DON'T take your "free" hand off the wheel to wave at me!!) and yucky.
I've been on Aspen Trail 3 times in the last 3 weeks. I LOVE trail running, it's beautiful and peaceful. I'd rather be scared or hurt by a bear or moose than run over by an SUV.
From here on out, trail running and riding only!
I've been on Aspen Trail 3 times in the last 3 weeks. I LOVE trail running, it's beautiful and peaceful. I'd rather be scared or hurt by a bear or moose than run over by an SUV.
From here on out, trail running and riding only!
My handsome husband on Aspen Trail Saturday. Bob, I took this one for you. I though you would like the snow!
This picture is from earlier in the week. A made a cook out on the Teton River. Delicious food and great company in an amazing place.
The sunset was even more beautiful than this picture. The view is to the West of the Big Hole Mountains.
A week from today is the NYC marathon!
You heard it right, a week from today is the NYC Marathon. Allison and I will be having a fun, fun time 164 hours from now. We leave on Thursday at 7 am from the Jackson Airport.
If you're interested in getting email alerts about my progress during the race, email me (contact@addisonssupport.com) before 10/30 and I'll add you to my email notification list.
If you're interested in getting email alerts about my progress during the race, email me (contact@addisonssupport.com) before 10/30 and I'll add you to my email notification list.
Wednesday, October 24, 2007
10 days until the NYC Marathon! The Plan...
Thursday, November 1 & Friday November 2: 30 mg hydrocortisone divided 10-10-5-5, 12.5 mg DHEA & .05 mcg Florinef. Good hydration!
Saturday, November 3: 35 mg hydrocortisone divided 10-10-10-5, 18 mg DHEA & .05 mcg Florinef. Good hydration!
- 10 mg HC & .1 mg Florinef upon awakening (5:00 am)
- Drink 1Q Gatorade early
- Eat usual breakfast and drink coffee
- 5 mg HC at 6:30 am (race at 9:45 am)
- 2.5 mg Prednisone HC at 9:00 am
- 2.5 mg HC 11, 12, 1
- 10 mg HC at 2 pm
- Gatorade and/or water every 10 minutes
- TOTAL (approximate) HC=42.5 mg HC or equivalent. I will probably end up taking more but this is the bare bones of the plan.
Post Marathon :
- Drink water
- Drink champagne
- Drink margaritas
- Drink Gatorade
1st day post marathon:
- 30 mg HC & .05 mcg Florinef
- Decrease Florinef back to .025
- Decrease HC slowly back to 20 mg HC
Tuesday, October 23, 2007
Off topic - political
Some of you may not agree with this but for those of you who do, please do something! I don't usually put political stuff in my posts but I saw this video and felt that others might enjoy it.
If you don't agree with me, that's ok. Do things to better our world in your own way.
If you don't agree with me, that's ok. Do things to better our world in your own way.
Sunday, October 21, 2007
Can't keep up
I can't keep up with life these days. I will email you eventually, so behind...
Add a little bit of work (for money, wahooo!) into the mix and the Teton Valley Hospital Foundation's annual Festival of Trees (I'm a volunteer) and I'm useless for anything else that needs to get done...
I've continued to run, although not today. I'm as ready as I'm going to be to do the New York City Marathon. I have absolutely no hopes of qualifying for the Boston Marathon (sorry Linda!). My body is tired. The triathlon and the 50 sucked the life out of me.
I am so looking forward to NOT RUNNING for a little while!!! I won't run from November 5th to around December 31, 2007 unless I really, really want to.
The NYC Marathon is on November 4th. Allison and I are leaving on November 1 to stay with Donna in NJ. I'm so lucky to have Allison joining me in this adventure! I will stay on in NJ a little bit longer and visit my 96 year old grandma in central NJ.
Add a little bit of work (for money, wahooo!) into the mix and the Teton Valley Hospital Foundation's annual Festival of Trees (I'm a volunteer) and I'm useless for anything else that needs to get done...
Milissa being buried alive in the See N Save Christmas shed. This is where the magic for the Festival of Trees begins.
I've continued to run, although not today. I'm as ready as I'm going to be to do the New York City Marathon. I have absolutely no hopes of qualifying for the Boston Marathon (sorry Linda!). My body is tired. The triathlon and the 50 sucked the life out of me.
I am so looking forward to NOT RUNNING for a little while!!! I won't run from November 5th to around December 31, 2007 unless I really, really want to.
The NYC Marathon is on November 4th. Allison and I are leaving on November 1 to stay with Donna in NJ. I'm so lucky to have Allison joining me in this adventure! I will stay on in NJ a little bit longer and visit my 96 year old grandma in central NJ.