Blog changes

Thanks to everyone who followed Training Because I Can! over the last nine years. This blog started with Addison's Disease, hypothyroidism and a crazy idea of doing an Ironman distance triathlon. My life has changed and so has this blog. I am using this blog strictly for Addison's Support topics from here on out. I hope to continue providing people with hints for living life well with adrenal insufficiency.

Monday, February 28, 2011

Beads, Berbers and Blizzards

On my long run last Sunday, I tried to pretend that I was running in the desert.  This is what it looked like in my mind.  My Photoshop skills stink.

Reality was a vast expanse of snow and wind.
With 28 days until I leave for Marathon des Sables, training is winding down and preparation is getting into gear (ha, pun intended!).  I have a little bit more time now than I have in the last five weeks.  Whew!  There's lots of packing to do, things to buy and logistics to put into my brain.

What I'd like to do is wear a necklace with beads or other small objects from friends and Addisonians.  I'd like to take a little piece of each of you into the Sahara Desert.  It doesn't have to be new or fancy or even a bead, just something really small (under 1 inch) and that won't tickle (like hairy).  If you are interested in sending me something, email me at my regular email address or contact@addisonssupport.com so I can give you my address.  If you need a couple of bucks for postage, I will be happy to send you a small prepaid envelope.

So far, I have a square pearl from Leigh and parts from a bracelet that Nancy gave me (sorry Nance, I didn't take it off after you gave it to me and I wore it out!).

Berbers - I thought I needed some clever alliteration in the title!  There will be Berbers at Marathon des Sable!  They will be transporting and setting up tents.  Want to see a cool video about MdS?  Here you go.

Blizzard - last Sunday I did my long run.  The morning started out nice enough with no breeze and fluffy ankle deep snow.  It was gorgeous!


Pretending the snow is sand.

Stopped at the coffee shop to warm up and get some espresso.   Because I'm so dang slow, I don't mind taking pictures, drinking coffee and looking around on runs.  Heck, I'm not going to win so why don't I enjoy the hell out of it.


I had to take a picture of this poor horse.  He's the ugliest paint I've EVER seen!
About 25 miles in, I was alternately slipping on ice and tripping over drifts.  I don't know if you can tell from this picture, it was nearly a white out at times.  I'm smiling because I was laughing so hard at what a crazy person I was.  The wind was blowing SO HARD.  At this point I though, I could have Paul pick me up.  Oh, no, he can't the drifts are too big and the car can't get through!!

By the time I got home, the sun had momentarily come out, the drifts in our yard were 4 - 5 feet high!  That's a 500 gallon propane tank.  You can't tell there's a 3 foot high deck under about half of the picture and several lilac bushes half way!


Saturday, February 19, 2011

RANT: HELP YOURSELF!

A health related rant coming on.  Don't read it if you're not interested in health and/or rants!

I find it absolutely amazing how many people go to a doctor and just expect him/her to come up with all the answers in a ten minute meeting.  I'm not sure how you can expect someone to figure out what's wrong with you in such a short period of time.  No doctor can do this unless you've got a broken bone sticking out of your skin.

You have to help yourself to get the medical care you deserve.  You have to do WORK.  You can't rely on someone to know all of your complaints, medical history and family history without laying it out for whomever you are seeing to get a diagnosis or follow up for a disease.

You might argue that if you give a doctor too much information, he/she will think you are a hypochondriac.  If you are NOT a hypochondriac and the doctor thinks you are, you have several options:
  • You can walk out of the office right then and there.  This doctor is not the doctor for you.
  • You can fire the doctor after the appointment.
  • You can file a complaint with the doctor's office and the State Medical Board.
There is no reason for a doctor to dismiss you or treat you as a hypochondriac because you are acting like you want to get well.

Homework before an appointment.  Get a binder and compile the following information.
  • I can't stress enough that making a clear comprehensive list of your symptoms in a logical order (top down or body system) will help your doctor.  Date this list and keep a copy.  Make a copy for your doctor.  Stay away from mental symptoms specifically if you're female.  Depression is a catchall.
  • Personal heath history, list diagnoses that you already have, head injuries, body parts that have been removed.  Date it, copy it, put one copy in your binder give the doctor the other copy.
  • List all medicines and supplements you take.  Note the times you take them and doses.  Date it, copy it, put one copy in your binder give the doctor the other copy.
  • Family history of causes of death and diseases.  Date it, copy it, put one copy in your binder give the doctor the other copy.
  • Make a list of the three most important questions you want to ask the doctor about.  Leave plenty of space to fill in the answers.  Date it, copy it, put one copy in your binder give the doctor the other copy.
  • Get copies of all of your medical records and labs as far back as you can.  If you reside in the US, you are legally entitled to all of your medical records.  If you are refused your medical records, this is a HIPAA violation.  You have legal recourse.  I like to organize these records in my binder by year.
  • Get copies of all of your labs from now on.  It's easiest to REQUEST COPIES BEFORE YOUR BLOOD IS DRAWN.  You can ask to have them faxed, emailed, etc.  DON'T BE A PATIENT PATIENT, SHIT, HOW LONG DID IT TAKE YOU TO GET AN APPOINTMENT IN THE FIRST PLACE??  IF YOU HAVE YOUR RESULTS BEFORE YOUR FOLLOW UP, YOU ARE SAVING TIME.  YOU WILL BE AN EDUCATED CONSUMER.  YOU WILL GET BETTER FASTER.
  • Do you think you suffer from a specific malady?  Want a particular blood test?  GET COPIES OF MEDICAL DOCUMENTATION.
    • medscape.com is an awesome resource
    • Pubmed 
    • Google Scholar
  • Bring your binder with you to all doctor appointments.
Generally, I think people are too lazy to do the above steps.  If you are and you can't get a diagnosis, DON'T COME WHINING TO ME.  If you do all of the above steps and can't get diagnosed, shoot me an email, post on the www.addisonssupport.com forum.  We'll brainstorm and figure something out that might help you get a diagnosis.

Once you get in to the appointment, hand the doctor  copies of your symptoms, personal health history, meds/supplements, family health history and list of 3 questions.  The questions should be on top and in order of importance.  Hold off on handing the journal articles to the doctor that back up your point.  IF the doctor balks or denies you, hand him the article that's specific to the question.

If you are given a script and/or lab orders, don't blindly take the meds or get the blood work done.  Take 20 minutes to google your script.  Check the FDA's orange book for drug interactions.  Talk to your pharmacist and ask lots of questions.

BEFORE GETTING LABS DRAWN:
  • Go to labcorp.com and read about each and every blood test
  • Print out each protocol
  • Do you need to fast?  Get the test run first thing in the morning?  Eat before getting the blood drawn?  Is there a special protocol?
  • If you need to get the tests done under certain circumstances, DO THE TESTS RIGHT!  Bring the protocol with you.  If the test requires a lavender stopper, centrifuging and to be put immediately on ice, discuss it with the tech.  MAKE SURE IT'S DONE RIGHT.  Usually techs are more than accommodating and want to get it run right so you don't complain to the hospital and refuse to pay for the test (that's what I do!).
This is too long of a post.  I'm done and I hope it helps.

Sunday, February 13, 2011

ONE YEAR STREAKING ANNIVERSARY!



The hardest day of my streak.  It was around Christmas, it was late and I remembered that I had not done my mile yet.  What a great outfit.

I got a stress fracture of the neck of my right femur last year.  The day I was allowed to start walking, I did.  Today is the one year anniversary of walking or running a mile a day.  It wasn't as hard as I thought it would be.  I encourage everyone to fit 15 - 30 minutes of movement in per day.  It's a cheap, easy way to stay healthy.

Not a whole lot to say.  Running is going fine.  The right leg is sore and weaker than the left (still!!!)  Although it's been a year that I've been using it.  I'm avoiding a run today by doing stuff like this.

Pictures from the last two weeks below.


Trumpeter swans, two mature adults and four babies



Trumpeter swans flying away


If you listen closely, you can hear the Trumpeter swans trumpeting

Bagleys have at least seven white buffalo.  You can see four of them here.  

I think this is Fossil Mountain.  It was too pretty to pass without taking a picture.

My baby survives a right of passage, wisdom tooth removal.

Yeah!

Teton Pass.  Absolutely NOWHERE to pee!!!

Top of Teton Pass, see the picture below to see how much snow there is.


What a view from the top of the pass!


Summer 2007