Want more of your medical care! Yet another rant...

Have a good doctor for your family and your chronic conditions?

What makes a good doctor? A person that:

• Looks at you and sees you
• Cares when they ask, "How are you today?"
• Is respectful
• Educates him/herself about your uncommon condition
• Listens to your concerns
• Will dialog about your medical concerns
• Is not too cool to look at information that you bring
• Trusts your intuition about your body
• Asks kindly if you think you you are depressed and trusts your answer
• Will order reasonable blood work for your condition and other potential comorbid conditions to rule the conditions in or out or to establish baselines

What makes a bad doctor? A person who:

• Has knowledge of your condition from thirty year old research and vague thirty year old medical school remembrances of the one hour during one semester where he/she learned that JFK had Addison's and how it was treated then
• Refuses to write your scripts for slightly more med than you need so you can have extra in your purse
• Refuses to write you a script for solucortef actovial if you have Addison's because, apparently, he enjoys being sued for malpractice!
• Is an ass
• Makes you feel like a hypochondriac
• Refuses basic blood work
• Makes you feel guilty about getting copies of your labs
• Thinks you're crazy for bringing in enlightening information about your condition
• Doesn't trust your judgement or intuition

When many of us go into the doctor's office, it's intimidating. We're left in a tiny, smelly, often windowless room for entirely too long with nothing to do but search through the drawers and steal pretty colored rubber gloves. Oh, did I say that out loud? We know that once the doctor comes into the room, he/she is already thinking about how fast he/she can get out of the room and on to the next patient. We might have lots of concerns, questions, symptoms to share, script requests and blood work requests. We've got to be organized when we go into the office. Here's a good game plan:

1. Make a list of your meds and supplements, quantities and times you are taking your meds. Ask for prescription refills now!

2. Make a list of your questions.

3. Make a list of your symptoms.

4. Make a list of the blood work you would like to have done.

5. Bring a copy of this paper to your doctor that he/she can keep.

6. If you have information you want to share with your doctor, make sure it's from reputable sources (journal articles or abstracts) so you doctor will take it seriously. Highlight important stuff. GIVE DOCTOR COPIES and request that they be put into your file.

7. When you get your blood drawn, INSIST THAT YOUR LAB WORK GET FAXED OR MAILED TO YOUR HOME BEFORE THE BLOOD IS DRAWN. It's vital to get your lab work results BEFORE you go to your follow up. It's vital to have copies of ALL of your lab work for as far back as you can get it. We're not dummies even if we don't have medical degrees. You will care enough to see trends in blood work that your doctor might not have time to see. I for one, diagnosed my Addison's and hypothyroid before a doctor caught on. I'm more aware of the comorbid conditions to Addison's than many doctors and can watch my blood work for signs of the next disease that I will collect.

Please be proactive. Please insist on respect. Please get copies of your labs. Be a knowledgeable consumer. You deserve to be healthy and live every day to the fullest. You can't do that if you can't get out of bed!

Pictures

Not much to say right now except for a rant later today. Can't help myself and have pictures to share.

Beautiful, foggy spring morning

Pole Canyon. Someone left a snowmobile on the trail. I had to play on it!

Dolly keeps a fresh bone away from Bridger

Donna is surrounded by horses.

Gorgeous spring afternoon

Sledding on a trash bag. Hill was steep. Sledding with Meara was so much fun!

Girl's day skate skiing at Teton Springs

Darby with Joanne. Snow biking

Another view of snow biking

A sign of spring, snow coming off the roof!

Lisa Smith-Batchen put together a fundraiser for Haiti. Just a few of the people who showed up over the course of 3 days. Thanks Lisa and Teton Springs for the event

Stop wishing, start doing...or stop wishing!

Yep a rant. This is a rant directed at people who are perfectly healthy, capable and intelligent wishing for things that they can easily have and don't have the desire to work for.

Perfectly Healthy Person (PHP): "I wish I could X" X being a certain physical accomplishment/

Me, Woman with Chronic Diseases (WCD): "Why can't you? All you'd have to do is try."

PHP: "Well, I don't want to try."

WCD to herself: "Sheesh, stop wishing for things you're perfectly capable of doing if you'd just try!"

Here's my beef. In order for me to do the things I do, I have to try really hard, I have to plan very far ahead, I have to work out EARLY in the morning (cause that's when I have energy), I have to research, study and confer with my other WCD's, I have to carry pills, an injection kit and wear a Medic Alert bracelet. I have to tell friends, acquaintances and race directors my freaking health history and show them where my meds and Emergency Injection kit are. I have to risk dehydration if I don't take my pills right. I have to risk going to the hospital if I start throwing up. Through trial and lots of error, I have to take pills the whole time I'm working out. I go to bed early and don't socialize in the evening because I want to accomplish the things I wish for.

Please, if you wish for something and you CAN do it. Just DO IT or don't mention it!

If you wish for something and you don't want to try to do it even if you can, keep your wishes to yourself. It's a insult and taunt to me for a person to be fully capable of easily doing something and saying they wish they could do it but paying no attention to what it took me to accomplish the same thing.

A "simple" goal for me and many of us with Addison's is not so simple. Running (or any physical activity) is not just putting on shoes and going out the door, there's so much more to it than that. Just the logistics can be intimidating and exhausting let alone accomplishing the actual physical goal.

End rant.