I started this blog in 2007 with the intent of chronicling my training for the Vineman full triathlon (2 miles swimming, 100+ miles biking and a marathon) with Addison's. In the years since the Vineman, this blog had become a place for me to post pictures, rant about adrenal insufficiency, discuss exercise and ultrarunning, post pictures about birds and whine about my shoulder and various ailments. My life has changed and now I've basically devoted my life to helping improve the lives of people with adrenal insufficiency.
I've decided to make this blog about adrenal insufficiency only. My website www.adddisonssupport.com has been streamlined. The forum is still free and available to anyone who applies and writes one sentence in his or her "application". I am available for a fee as a consultant to help you get diagnosed, optimized or educated. I can also be hired to be an advocate who attends your doctor appointments with you virtually or in person. In the next couple of years, I hope to write a book or two (Thank you, Dave C for the kick in the pants) to help guide care of people with adrenal insufficiency. There are only a few experts who specialize in adrenal insufficiency, my hope is that you can become an expert on your diseases and help your physician become one as well so that you can live the best, healthiest life possible.
Thanks to everyone who followed "Training Because I Can!" to read about my running adventures, birds or just to hear me whine. I hope you enjoy "Addison's Support Advocacy Blog" in a different but more important way.
7 comments:
Way to go Dusty! You have been such a vital piece of my journey with Addison's over the past 6 years - so glad you will be able to be there for others with even more intensity and focus when they need it. Love and Aloha from Hawaii! Cathy (cathd)
Thank you, Cathy! I hope that no news from you is good news! :)
Ha! Yep - It has taken 5 or 6 years, but I slowly got healthier and healthier. You answered many of my early questions on the first forum as cdhulse. If not for that and your wonderful feisty little attitude might have believed that my life would remain severely limited. I still have challenges of course, and the dreaded new endocrinologist: she wants to question things that are already working because they don't line up with what would be typical (thyroid right now). Mostly quality of life vs. risk of longterm consequences stuff.
However, over time my questions have been so much better informed due to you and those on your blog, and my confidence so much higher when I seek out the things that work best for my body vs. general recommendations that lurk out there. As we all surely know, each day with AD is a tiny chemical experiment, but I am able to work full time as a School Psychologist, have travelled a bit with my family, and have had NO major crises or hospitalizations during the past few years. So grateful. I will still be checking in a couple of times a week. Let me know if there is any other way I could support YOU! Cathy
Thank you so much for the update! I'm glad you're doing so well!! May I use these comments for my testimonial page on my website?
:) Dusty
Sorry Dusty - I thought I posted but it must not have gone through. Of course you can use whatever helps to support!'
Cathy
Thank you! I will add it to this page right now. http://www.addisonssupport.com/testimonials.html
:) Dusty
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