Blog changes

Thanks to everyone who followed Training Because I Can! over the last nine years. This blog started with Addison's Disease, hypothyroidism and a crazy idea of doing an Ironman distance triathlon. My life has changed and so has this blog. I am using this blog strictly for Addison's Support topics from here on out. I hope to continue providing people with hints for living life well with adrenal insufficiency.

Wednesday, January 2, 2008

Addison's Emergency Injection Kit - DON'T LEAVE HOME WITHOUT IT!

Explanation of Adrenal Crisis - on emedicine.com, you will need to sign up for a FREE account to view this EXCELLENT explanation of an Adrenal Crisis. You need an emergency injection kit to pull you out an Adrenal Crisis.

Who needs an injection kit?
  • ANYONE who has been diagnosed with Addison's disease. If your doctor says you don't need an injection kit, he is sadly, sadly mistaken. Most ambulances DO NOT carry Hydrocortisone and/or will make you wait until you get admitted to the Emergency Room to be injected. Check with your local ambulance crew to see if they carry and will administer Hydrocortisone. Idaho, Montana, Utah and Colorado are a few states that do not carry or administer Hydrocortisone to Addisonian's in crisis.
  • Emergency Medical Response by state, complements of CARES
Why does a person need an injection kit?
  • Vomiting - vomiting more than twice is cause for an injection. Dehydration is dangerous for Addisonian's.
  • Accidents - see above.
  • Back country travel - often if you are hiking or biking in the back country, transportation to medical services is a long, long way away.
  • Foreign travel - you need to be prepared if you are in a foreign country. You need to be responsible for your own health at all times especially if you're in a foreign country.
What is in an injection kit?
  • A basic kit could contain the following
    • A needle (I've got a 21 Gauge 1 inch - your doctor can recommend the best needle for you
    • 250 mg Solucortef (I've got 250 mg because I am often far from medical help and my doctor thought that would be a better choice for my circumstances). I keep mine in its original box
    • Alcohol swabs - inexpensive and can be purchased from pharmacy
    • Instructions on how to give an emergency injection sealed in a zip-loc bag
    • MedicAlert card
    • Addison's crisis emergency protocol
    • A letter from my doctor that says: "This is a letter stating that (YOUR NAME HERE) (Date of Birth HERE) is a patient of mine who has Addison's disease. She must carry in her possession a supply of Solu-Cortef and syringes while traveling. Please accommodate her in this regard."
    • Peptobismol, Hydrocortisone pills, salt pills (all optional but I like to carry them with me)
  • These are the contents of my basic emergency kit


A close up of the Solu-Cortef



This is what my basic kit looks like all wrapped up in a snack size zip-loc bag (6.5 inches x 3.5 inches and 2 ounces)



  • The deluxe kit could contain
    • All of the above items
    • Rubber gloves, plastic wrap and a trash bag
    • Mole skin, minipads, various bandaids, athletic tape & toilet paper
    • Tweezers, safety pins, razor
    • A light source, matches and lighter
    • Pills: Immodium, Hydrocortisone, Zofran, pain killers
    • Sunscreen stick
All the junk in the deluxe kit




Deluxe kit all packed up. 7 inches x 4.5 inches x 1.5 inches and 8 ounces


Last but not least the MedicAlert bracelet
  • All Addisonian's need a MedicAlert bracelet (or similar). I've been told the necklaces are not a good idea because if you are laying on your back, the pendant slides around to the back and can be undetected by emergency crews
Both of these pendants were ordered from MedicAlert. I sewed the pendant on a watch band (above) because the "active band" from MedicAlert has a clasp that opens easily when you're being active. I also put the pendant on the second one because I liked my beads better than the MedicAlert choices.

Tuesday, January 1, 2008

2008


2008 plans for this blog:
  1. I'm going to post an Addison's disease specific topic every Wednesday. It will be factual (as opposed to opinion) in nature. I will provide as many references as possible. I encourage anyone who is reading this to suggest topics and to comment on my posts. If you have information that you'd like provide on a specific topic, I'd love to post it for you if you're not able or comfortable doing it yourself
  2. Document my training through pictures
  3. Provide inspiration and information to others with Addison's disease
2008 plans for me:
  1. Stay healthy through regular, well planned exercise, research and good eating habits
  2. Obtain sponsorship to make it possible for me to continue to stretch my limits. I'm not really good but I finish and I have a good attitude!! If you know higher ups at Columbia (Mountain Hardware division), Cloudveil, ASICS, Merck or Danskin who would be interested in sponsoring me, contact@addisonssupport.com for a resume.
  3. Run from Teton Canyon to Grand Targhee ski area every month in 2008
  4. Do the following races
    1. Run the Desert Rats 50 mile race in April 2008
    2. Run the Grand Teton Races 100 miler in August 2008
    3. Ride the 24 hours of Targhee solo in September (mountain biking)
    4. Do an endurance mountain bike race in November of 2008 with my husband

Winter 2007



Earlier this week Victor, Idaho (11 second video)


What an Idaho person has to wear in addition to a coat, hat and sneakers during many months of the year in order to run. Clockwise from top left: cleats, box of replacement cleats, goggles, bedazzled gators, balaclava, glove liners and an iPod. I always take a trash bag with me just in case the wind starts blowing really hard.