Blog changes

Thanks to everyone who followed Training Because I Can! over the last nine years. This blog started with Addison's Disease, hypothyroidism and a crazy idea of doing an Ironman distance triathlon. My life has changed and so has this blog. I am using this blog strictly for Addison's Support topics from here on out. I hope to continue providing people with hints for living life well with adrenal insufficiency.

Thursday, January 8, 2009

Need pictures of Addisonians & 100 miles at Rocky Raccoon

First, I'd like to request pictures of other Addisonians.  I'd love to post them (without last names) here.  Email your pic to me, if you're interested, at contact@addisonssupport.com.

I've done it.  I signed up and paid for my entry to Rocky Raccoon's 100 mile race.  It's on February 7th and 8th in Huntsville, Texas.  I am hoping to finish in less than 30 hours.  Mostly, I'm hoping to finish.  Just typing this, I am getting very nervous.  Anyone running/walking/crawling 100 miles has something to be nervous about.  For most races, even short ones, a person creates a strategy for the race.  She has to decide when to eat, drink and what pace to do at what times.

A person with Addison's has another, very important, game plan to create.  I've got to figure out how to dose my hydrocortisone and florinef, when and how do I take my other meds (some are creams) during the race, how the heck does an Addisonian dose for staying up and being active all night long.  Electrolyte replacement is important for all runners but because Addisonian's don't retain salt as well as normals.  How does an Addisonian replace electrolytes optimally during a race when temperatures will probably be warm but not hot.  Hydration has to be maintained because dehydration leads to a trip to the ER and a trip to the ER can be a nightmare for us because doctors don't know how to treat us.  In addition, I've got to decide which meds to bring with me from my arsenal of Addison's meds.  I'm not kidding, my meds, syringes, supplements will take up a corner of my suitcase!  There's paperwork for the medical director, paperwork to carry on my person and paperwork for my big emergency kit.  The paperwork explains emergency protocol for treating me if I go down.  Also, I carry a small emergency kit in my pack, just in case.  I've got to make sure all my Solu-Cortef actovials are in good condition and not out dated.  The list goes on and on.

If you've read this far and you're wondering why I don't just ask my doctor what I should do, the answer is simple, no doctor knows anything about Addison's and endurance exercise.  The reason being that the research on Addison's and exercise is comprised of deconditioned adult and juvenile Addison's males who ride a bike or walk on a treadmill for 90 minutes a day over the course of a week.  Nothing extrapolated from that research really applies to me, a conditioned female with multiple endocrine deficiencies, that gets 15 - 20 hours of exercise a week, who will be staying up all night getting exercise for 30 hours straight.

Any hydrocortison/florinef suggestions welcome, post a comment below or email me.  Linda's given me some good ideas.  I will post my med plan here when I figure it out.
Post a Comment