Sunday, my husband Paul and I ran for a while. It was hot and it caused me to become a little nervous about the triathlon. I will need to figure out how to be more comfortable in the heat! After the run, I loaded up into a minivan with my best girlfriends and we drove to Pinedale, Wyoming to pick up S's child. It was a nice break to spend 6 hours knitting and chatting with my best girlfriends!!
Also, the 15 mg extra of HC was a good amount to bump up for the 80 mile bike ride with a nasty headwind. I was tired and slept well on Saturday night. I was less sore on Sunday morning than I was on Saturday morning! Wooo Hoooo!
Today was a rest day and I'm trying to get paperwork and emails taken care of.
A thought: I received an email from someone who sounded very down. My intent with this blog is NOT to make anyone feel bad about what they can't do. My intent is to show sick people that there is hope to live an ordinary life (and to get healthy people inspired to get out and appreciate the health they have!) and to raise money to support the NADF.
We all have mountains that we want to climb, sometimes the mountain is literal, sometimes it's figurative. All we can do is set goals and create steps to reach the goals. If we don't reach the goals, that's ok!
A quote: "It is a paradoxical but profoundly true and important principle of life that the most likely way to reach a goal is to be aiming not at that goal itself but at some more ambitious goal beyond it." - Arnold Toynbee
If you're not happy with your health or health care, I encourage you to get a second or third opinion (or 4th or 5th...). Study (see the research links to the right), learn, research, reach out, question authority. DON'T SETTLE for less of a life than you deserve and want. There is so much you can do, it might take time but you will find different options through research.
I'm off my soap box for now.
1 comment:
Hi Dusty,
I absolutely love your pictures and blog. I wish Karlisa (the photographer daughter) could just pop in there. She'd be sooo happy! Maybe some day she'll take a mini-vacation and you can show her the best trails. She does like hiking, but needs help carrying the photo equipment because of her shoulder injury.
I am so glad that you're doing this. I can hear the enthusiasm and joy in each blog. I can hear the "normal" struggle on days when you don't feel much like going out and days when Addison's has you couched. I think it's awesome that you express this in your writing.
We each do what we can with our disease and situation and I know THAT is what you are trying to inspire in people, as well as the donations for further research.
I think that you would be inspiring to Nicole when she feels up to getting on the computer. She doesn't have an illness, but a shattered pelvis and there's no guarantee that she'll ride again. Drs. say she will, but no one truly knows. She knows how I struggle with addison's disease and I think seeing how you have climbed (and are climbing) your mountain will be incredibly encouraging to her too.
I could never run to the mailbox, but Vern and I make a good team to bring everyone this web site. That's what I can do to help people and I enjoy it.
Others, like you, inspire me to walk to the mailbox instead of asking one of the kids to get them mail. All those little bits of encouragement help. I think about what others on the site are doing and think, "Could I do 1/100th of that? Go try!" It is mentally healthy as well as physically healthy.
If people are dragging you down, just let us know. We're behind you 110%!!! Keep it up!!!
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