Blog changes

Thanks to everyone who followed Training Because I Can! over the last nine years. This blog started with Addison's Disease, hypothyroidism and a crazy idea of doing an Ironman distance triathlon. My life has changed and so has this blog. I am using this blog strictly for Addison's Support topics from here on out. I hope to continue providing people with hints for living life well with adrenal insufficiency.

Sunday, November 29, 2009

Risk taking part of being healthier with chronic disease?

Someone on the Addison's Support Forum got me thinking about why some people with Addison's are healthier than others. My answer was:

I think there's a common thread that runs among those of us who live our lives normally. We research our diseases, keep copies of our labs and research. We're probably not considered the most compliant patients either! We hand doctors highlighted journal articles, question "normal" labs (and back up our questions with documentation) and suggest more up to date treatments and protocols than are being offered. Most doctors need a little boost of knowledge because they treat so few Addison's patients. There are so few of us that we can't expect them to read the latest journal articles about our condition on their own. We have to find the info and share it with them so they can treat well. We also ask to be tested and treated for comorbid conditions. Most importantly none of us are willing to settle for feeling ok if we can feel normal.

What I wrote above got me wondering if those of us who consider ourselves to feel well also consider ourselves risk takers? If you're a "healthy" person with chronic illness, do you consider yourself a risk taker? I can think of a few of you that I know personally, through email, phone calls and/or blogs that I would consider risk takers and you're all well despite a chronic illness or two or three.

Risk taker needs a definition: someone who risks loss or injury in the hope of gain or excitement

Are you unafraid to speak up to your doctor, follow your instincts with educated choices or ask the medical profession for what you want and need in order to gain good health despite the potential risks?
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